Contact Us!


What is CJD Voice

We are a grass roots organization of individuals formed in May 1997 to support families during and after a CJD crisis.  We also discuss various issues surrounding CJD and other related illnesses.  As of October 1999, we have over 400 members.

Our main objectives have been

  • Offering support for families during and after CJD. 
  • Provide a forum for discussion of topics relating to CJD. 
  • Lobby for increased education regarding not only in the public community but medical communities as well. 
  • Lobby for  increased funding for research into CJD. 
  • Lobbying to change the state to state reporting practices of CJD to the CDC. 
Thanks for contacting CJD Voice from the founders, Dolly, Pat & Liz. 


Submit a member profile

Click here to send your email request to join the mailing list

Past entries before April 2004 on the Memorial Calendar have been lost, please re-submit your information of loved ones and friends whom were victims of CJD... click here to submit your info





Contact Us

Copyright 1997- 2012, CJD Voice. All rights reserved.
Link to Us! Graphics used as link buttons.
For problems or questions regarding this web contact
You are visitor number since February 18, 1998