Where Can I Get Help?
The following organizations can provide
information and support for people and families affected by
Creutzfeldt-Jakob disease:
Creutzfeldt-Jakob (CJD) Foundation Inc.
P.O. Box 5312
Akron, OH 44334
crjakob@aol.com
http://www.cjdfoundation.org
Contact Helpline 1-800-659-1991
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Voice Mail 800-999-NORD (6673)
Tel: 203-744-0100
Fax: 203-798-2291
Alzheimer's Association
225 North Michigan Avenue
17th Floor
Chicago, IL 60601-7633
info@alz.org
http://www.alz.org
Tel: 312-335-8700 or 800-272-3900
Fax: 312-335-1110
Alzheimer's Disease Education and Referral
Center (ADEAR)
P.O. Box 8250
Silver Spring, MD 20907-8250
adear@alzheimers.org
http://www.alzheimers.org
Tel: 301-495-3311 or 800-438-4380
Fax: 301-495-3334
National Hospice and Palliative Care
Organization /Natl. Hospice Foundation
1700 Diagonal Road
Suite 625
Alexandria, VA 22314
nhpco_info@nhpco.org
http://www.nhpco.org
Helpline: 800-658-8898
Tel: 703-837-1500
Fax: 703-837-1233
National Family Caregivers Association
10400 Connecticut Avenue
Suite 500
Kensington, MD 20895-3944
info@nfcacares.org
http://www.nfcacares.org
Tel: 301-942-6430 or 800-896-3650
Fax: 301-942-2302
Family Caregiver Alliance
690 Market Street
Suite 600
San Francisco, CA 94104
info@caregiver.org
http://www.caregiver.org
Tel: 415-434-3388 or 800-445-8106
Fax: 415-434-3508
Well Spouse Foundation
63 West Main Street Suite H
Freehold, NJ 07728
info@wellspouse.org
http://www.wellspouse.org
Tel: 800-838-0879 or 732-577-8899
Fax: 732-577-8644
Centers for Disease Control and Prevention (CDCP)
U.S. Department of Health and Human Services
1600 Clifton Road, N.E.
Atlanta, GA 30333
inquiry@cdc.gov
http://www.cdc.gov
Tel: 800-311-3435
404-639-3311
404-639-3543
If you are interested in learning more about
steps taken to ensure the safety of beef and other agricultural products
in the United States, contact:
Department of Agriculture (USDA)
National Agricultural Library
10301 Baltimore Avenue
Beltsville, MD 20705-2351
lending@nal.usda.gov
http://www.nal.usda.gov
Tel: 301-504-5755/301-504-6856 (TDD/TTY)
Fax: 301-504-6927
For information on the safety of medical
products and procedures, contact:
Food and Drug Administration (FDA)
U.S. Department of Health and Human Services
5600 Fishers Lane, CDER-HFD-240
Rockville, MD 20857
http://www.fda.gov
Tel: 301-827-4573 888-INFO-FDA (463-6332)
Health care workers who wish to receive
information on special surgical and disinfection procedures should see
the
NINDS Fact Sheet for Healthcare Workers and Morticians
or contact the World Health Organization at:
World Health Organization
Avenue Appia 20
1211 Geneva 27
Switzerland, info@who.int
http://www.who.int
Tel: (+ 41 22) 791 2111
Fax: (+ 41 22) 791 3111
For information on other neurological disorders
or research programs funded by the National Institute of Neurological
Disorders and Stroke, contact the Institute's Brain Resources and
Information Network (BRAIN) at: BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
www.ninds.nih.gov
